I feel like yuk.
It's a normal Saturday. Everything about me is uncomfortable.
They say this feels like having a 48 week flu.....well it does, sort of. Although at full strength Peg. it felt more like the plague.
Now at half dosage I agree....this is the flu and a pretty good case of it too.
Saturdays are the worst. Sundays are somewhat better and Mondays usually suck because I'm still trying to shake it while at work. By Tuesday things seem to get better.
I'll spend today just like any other tx Saturday...searching for some kind of relief or comfort.
Still I have to look back and remember when I used to pray for 2 good days in a row. Now at least I get 4 half ass ed decent days......they may not be without sides, but at least I can deal with them.
94 days to go....sounds like a song doesn't it?
94 days of drugs on the wall, 94 days of drugs. Take one down.......
Have a nice Saturday everyone.
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Life and times of Dealing with a Dragon named Hep C
I found that Hep C has a nick name.
The Sleeping Dragon.
It's fitting.... Strange thing is that I've always loved Dragons.
I guess I never could have imagined that I'd have one of my own.
About Me
- Laurie
- I'm a 42 year old Mother of 5. 3 of my own and 2 of my Husbands. My 3 are 13, 17 and 21. His are 22 and 26. We have 3 boys and 2 girls. In my life I've had 17 surgeries, a tatoo and a blood transfussion. So your guess is as good as mine as to where I contracted Hep C. I do not believe it was from the tat. The gentleman that did the art was very careful with sterile tools. But who knows. I was diagnosed with Hep C on March 22, 2007. Geno type 1b with a viral load of almost 5 million. And now I turn the corner and yet a new path lay ahead of me...... A new Journey begins
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Hero's
3 comments:
Your so funny Laurie, When you hit day 99 I was singing the beer on the wall song too for you LOL
Sorry to hear that you are having a hard time. I guess the receptionist or nurse who wouldn't give you your patches didn't know what she was up against. Remember Terry Lee said to hide all the knives.
You are so close to being done with all of this and move on with your life with some well deserved energy again.It will all be worth it if you are cured! I am really praying for you.
I went in for my 30 days off tx appt. Got to actually see the doc it had been awhile. They will let me know soon about the blood counts and if I should start back with the baby aspirin along with my blood pressure pills. I have had a bit of high blood pressure this month along with big time headaches. Still losing hair. I could have made a wig out of the hair I cleaned out of my bathroom today. It was the first time I pulled everything out of it and cleaned since tx. My door looked like a sweater with all the hair stuck to it. My hair is blond so it was hard to see. Yuk! The study nurse says I started tx with 1/2 shot peg and I was going down in Vl in the beginning then at 12 weeks when they pulled us all off the study drug we all went to full dose (mg.)peg even though went may have taken only 1/2 the shot or 3/4. At full dose I dropped alot on VL even got into the negative but it wasn't long until my blood starting falling. To make a long story a bit shorter there is a new drug that was made for people with blood problems to help control both red and white blood cells. She wants to watch the results of this drug for several months and then she wants me to go back on standard care of treatment full peg shots and the ribavarin. Excuse me but is she F...king kidding!!!! It's only been 30 days and I am not ready to even think about it right now. She would do it next year 6 months or so. She said not to ever drink again (sucks) don't eat any fatty foods and exercise alot. Sounds fun.
I hope my little story makes you feel very happy about your 96 days and counting! Your life is getting ready to start again and it will be so much nicer now that you have seen how hard life can be, first hand. You are a real hero to many people so smile and feel good!!!!
When is your last day maybe middle of Jan? That is great. I hope next week will give you a bit of a break. Take Care and thanks for everything Rosie
Opps! 94 days and counting
Rosie,
I think that if I had to restart this over again I'd have to wait at least year.
My heart goes out to you.
It does sound like they might be thinking that starting with the trial drug may have kicked you too hard if they want to restart you on standard care now.
With my winding up with the blood transfussion, I know it kicked me.
I know it must be hard to hear them talking about tx again so soon after you stopped. But it is good to hear that they're working on the next game plan.
I hope you feel good soon and sorry about your hair....I would have thought it would stop falling out by now. They do say that it takes a couple of months for the drugs to filter out of your system, so it should be getting better soon.
Our thoughts and prayers are with you Rosie.
Take Care and don't worry too much.
((Hugs))
Love
Laurie
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