I woke up this morning with my old friend the little drummer boy was playing a tune on the back of my neck.
Grabbed some Ibuprofen to shut him up.
For some reason I just can't get to the point that I'm good this week. It seems to stay just out of my reach.
Still, I know it could be worst.
I'll just keep motoring through it and hopes that it gets better.
I'm sure that it will.
Ducky is just around the corner......
skip to main |
skip to sidebar
Powered by WebRing.
Life and times of Dealing with a Dragon named Hep C
I found that Hep C has a nick name.
The Sleeping Dragon.
It's fitting.... Strange thing is that I've always loved Dragons.
I guess I never could have imagined that I'd have one of my own.
About Me
- Laurie
- I'm a 42 year old Mother of 5. 3 of my own and 2 of my Husbands. My 3 are 13, 17 and 21. His are 22 and 26. We have 3 boys and 2 girls. In my life I've had 17 surgeries, a tatoo and a blood transfussion. So your guess is as good as mine as to where I contracted Hep C. I do not believe it was from the tat. The gentleman that did the art was very careful with sterile tools. But who knows. I was diagnosed with Hep C on March 22, 2007. Geno type 1b with a viral load of almost 5 million. And now I turn the corner and yet a new path lay ahead of me...... A new Journey begins
Blog Archive
Hero's
7 comments:
Ibuprofen is OK if your platelets are good, if they're low - don't take it - it's like aspirin, it stops your blood from clotting. Hadn't heard about little drummer boy in a while, I had thought he gave up and left town...
Hey Laurie,
I was sorry to hear of Teah worries. I did say a prayer for her and her family.
Today is my official 1/2 way mark. I go for the full checkup in the morning. Hopefully the virus level has gone down. I have been on 1/2 shot for weeks now so I am a bit worried, but it is what it is I guess.
Anything good with the hair medicine Can't remember the name I thought you said it started with a B?
This week has been the same for me. I really have not wanted to work all week and everything seems to be an effort..even typing. I was exhausted the other day making pancake mix for God's sake it was SAD. Have you got your results back from your 24 week visit?
Laurie I believe you had said you smoked...I do ...Have you noticed any increase in flem or coughing while on all the crap? And the sores on your mouth are they inside? I don't mean to sound like the third degree but I am coughing mor than before and I have sores on the corners of my mouth (outside) luckly they fall into the wrinkles so they are kinda hidden LOL
I still read you every day and am inspired my your wisdom and courage.
Take Care, Rosie
Hi Rosie, hope you don't mind me responding, read that Ribavarin can cause coughing as well as the Peg can cause feeling congested with sore throat. The sores could also be caused by the treatment, I have had something wrong with my mouth since April, sores and oral thrush, also read about sores in the corner of the lips. I know it gets to be a bit much, I can sympathize, in the same boat :). Oh Laurie had said her nurse mentioned Biotin for hair, I tried it and it does seem to thicken a bit. The thing that cheered me was the post about the lady with 3 hairs. It is depressing, losing half of my hair. The other day someone said, your hair used to be so beautiful before tx. I know they didn't mean to be mean, it still made me sad. I keep trying to tell myself, this too shall pass, course it is easier to say than do. I also don't want to work but know that if I was home I would just sit on the couch and stare so maybe it is good to have something else to occupy our minds. Well, couldn't sleep, wanted to check in see how everyone is doing. Laurie, I know what you mean about not feeling better, normally Thursday is one of my good days. I have two a week but some weeks I get cheated and don't get a good day for 2 weeks. I wish they had never told me I would get used to being sick. That was a lie.
I am praying for all of us. Rosie congrats on the half way mark. I would love to say it is down hill from here, maybe next week, ha ha
I am praying for Teah, her family and everyone. Thank you for sharing with us Laurie, you are such a kind and special person and I thank God the day I found your blog. It keeps me going
Love
Dorene
Dear Laurie, I meant to tell you. When my platelets were in the low 50's I was sent to a Hematologist, that is how the HEP C was discovered. Anyway, he told me that while tylenol would be best, if the tylenol wasn't working and I had to take something stronger I should keep in mind, aspirin paralyzes the platelets for a week while ibuprofen paralyzes for a couple of days. I try to stay away from everything but I do take ibuprofen when the mucsle/bone aches get so bad I can't stand it.
Love
Dorene
Sorry the drummer boy is back, I was hoping he had packed it in :)
Hey Iris,
I think my platelets have been pretty good ever since we got off of the trial drug and I've been on the Procrit.
I try to go back and forth between the Tylenol and the Ibuprofen...but when it come to the little drummer boy the Ibuprofen seems to be what shuts him up! lol It's one of those things that would cause me to take anything even if it were somewhat bad for, just to get rid of him.
Maybe he'll leave town again!
:)
Thank you
((Hugs))
Laurie
Rosie,
I know that Teah appreciates all of the prayers. She's such a wonderful person....I hope this is over for her and her family very soon.
Boy my fingers and toes are crossed that your viral load is down!! I know you've had such a hard time...let us know!
I couldn't find the Biotin (sp?) I think I'll goggly it this weekend or maybe Dorene can tell me where to find it.
I don't have my 24 wk results yet. I could have called for them but I've been affraid that if their good Doc. will raise my Peg. shot up to 100 units. I've been at 75 and I'm chicken to go back up. lol
Jimmy say's "If they're gonna raise it they'll raise it....do you think that if you call they'll say Oh Yeah we forgot..." But me, I'm kind of happy not hearing from them for right now.
Yes I smoke. I'm possitive that it doesn't help anything. Even Terry say's that I'm just lowering the oxygen flow in my already low blood count and it's making the fatigue worst than it has to be.
It can be any good for the mouth alcers and thrush. They probably take longer to heal.
I don't cough anymore that before, but I understand that the Ribaviran cause coughing. It's one of the reason that your Doctor checks your lungs during your visits.
Quit? No I can't imagine that right now. The mental roller coaster that I go through on these drugs is terrible enough to control without adding more to the plate.I just couldn't handle more....so I'll quit some other time. I have cut back though.
Your Viral is in our prayers and our thoughts....We'll be waiting with fingers crossed for your good news!
Take care my friend.
((Hugs))
Love
Laurie
Dorene,
Insomnia? Boy your up late. Sorry you can't sleep...that's one of the worst and the hardest on fatigue.
Where did you find the Biotin? I looked for it but I just couldn't seem to find it anywhere.
I don't think you get used to tx...I think you just learn how to deal with it a little better as you go through it. I also think that you begin to lower your definition of what feeling good is all about.
I can't imagine how surprised I'll be when this is over and the drugs are out of my system. I'll find out what feeling good really is once again.
Hang in there Dorene! I hope the insomnia gives you a break....you'll feel so much better if you can sleep!
((Hugs))
Love
Laurie
Post a Comment