I spoke to Hershey yesterday. I still have the lumps in my neck and now I'm spending time in the bathroom. My body hurts everywhere and Hershey has me watching my temp. If It goes up I have to drive to Hershey. They think I may have a bacterial infection.
I don't know know what it is.....but today is a very bad day.
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Life and times of Dealing with a Dragon named Hep C
I found that Hep C has a nick name.
The Sleeping Dragon.
It's fitting.... Strange thing is that I've always loved Dragons.
I guess I never could have imagined that I'd have one of my own.
About Me
- Laurie
- I'm a 42 year old Mother of 5. 3 of my own and 2 of my Husbands. My 3 are 13, 17 and 21. His are 22 and 26. We have 3 boys and 2 girls. In my life I've had 17 surgeries, a tatoo and a blood transfussion. So your guess is as good as mine as to where I contracted Hep C. I do not believe it was from the tat. The gentleman that did the art was very careful with sterile tools. But who knows. I was diagnosed with Hep C on March 22, 2007. Geno type 1b with a viral load of almost 5 million. And now I turn the corner and yet a new path lay ahead of me...... A new Journey begins
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Hero's
7 comments:
Good Morning Laurie, so sory you are not feeling weel, that break sounded nice thought. I know what you mean about having something to look forward to, we had the 24 week now nothing but I have to say that I do feel better without the Prodrug, I just hope I remain un detectable with out it. Yes we are one third of the way through this and it is working for us. Too bad it messes with all our blood counts, I never knew all the names for all these blood counts. It is like being in Science again. They tell me my ANC and platelets are not good and I will have to have a dose reduction again if they don't get back where they should me, then there is a problem with lmpho something or other. My Dad says they try to kill the virus without killing the body. I will be bald by the end of this, supposedly only 10% experience hair loss, yeah I won the lottery. My doc says only 1 other person out of their 490 is having the same problem, I wonder if my thryoid is out of whack.
Well I really only meant to say hi tell you I am thinking about you and of course it is me me me, sorry
Take care of your self, don't push yourself. as my doc says you are under treatment don't be so hard on yourself for not accomplishing things. Think about your clean carpet, chairs and deck, that is awesome! By the time I can clean again we will just have to shovel ourselves out.:)
Lots of loves and hugs your way
Dorene
So days are bad and some days are badder, these drugs show little mercy. You still have 24 weeks to look forward to and at that point you have hit the top of the mountain and you start your walk back down. My goals were 100, 200, 300, 335 and the big one was 1/2 way which I considered the point of no return. You're still UND and that's what's important. I know how badly the tx sucks.
Laurie - Every day brings you closer to the finish line.
I'm not sure I agree with your medical center's reasoning - a fever is a sign that your body is fighting infection, it's not necessarilly a bad thing...
Dorene - I can't believe that only 10% of people on treatment experience hair loss, everyone I know had it to some extent. But, if your thyroid is out of whack, that can make hair loss worse.
My hair has left the building. It wasn't great to start with but now it has just withered and died.
Dorene,
It is like science class isn't it!
Your having the problems that I am...including the hair. The problem with "lmpho something or other" are your Lymphocytes. ANC are your Neutrophils. Both are types of white blood cells.
Platelets are what clot your blood. When they're low you bruise easily and can bleed a lot.
Anyway, with all of those low you feel like shit! lol I know it well.
They haven't put you on Nupogen or Procrit yet? Both help bring those counts up.
They tell me that once we're off the tx our hair will grow back. They say we shouldn't loose it all, It'll just get very very thin...with any luck.
I'm glad that we talk about you! I don't feel so alone and I feel better knowing how you guys are doing!
Take care my friend.
((Hugs))
Love
Laurie
Terry,
Half way...yes, it's a good goal.
I will use that :)
Thank you!
Love
Laurie
Iris,
Hershey's train of thought with "if I run a fever come to the Hospital" is that they don't know if my body is going into fighting a bacterial infection or has it already faught and I'm recovering.
Am I at the point in this of getting better or will I get worse.
They think that if I begin to run a fever now that I'm getting worse and they want me in Hershey to control how bad it gets.
My fever really hasn't been "High". It only goes up to 99.8. If it hit 100 I'll go.
For now I hold my own. But Jimmy is watching me like a hawk.
((Hugs))
Love
Laurie
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