The half shot of Nuepogen has me waking up this morning with bone aches. At least it's not bone pain like I get from whole shots. Tylenol will take a lot of it away for me.
I got the call from Hershey. I restart tx today at the lowered dosage. 3 Ribavirins a day instead of 4 and a half dosage of Inerferon tonight. Here we go again.
I'm sure that this day will get better before it has to get worse.
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Life and times of Dealing with a Dragon named Hep C
I found that Hep C has a nick name.
The Sleeping Dragon.
It's fitting.... Strange thing is that I've always loved Dragons.
I guess I never could have imagined that I'd have one of my own.
About Me
- Laurie
- I'm a 42 year old Mother of 5. 3 of my own and 2 of my Husbands. My 3 are 13, 17 and 21. His are 22 and 26. We have 3 boys and 2 girls. In my life I've had 17 surgeries, a tatoo and a blood transfussion. So your guess is as good as mine as to where I contracted Hep C. I do not believe it was from the tat. The gentleman that did the art was very careful with sterile tools. But who knows. I was diagnosed with Hep C on March 22, 2007. Geno type 1b with a viral load of almost 5 million. And now I turn the corner and yet a new path lay ahead of me...... A new Journey begins
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Hero's
8 comments:
OMG, you must feel like a pin cushion :-)
Good Mornin Laurie, I am happy to hear that your blood work is up. I know it is scary, the anticipation is the worst I was worried last week and it turned out that I was always on 180iu, thank goodness. don't think I could have taken getting sicker again. We are almost 1/3 of the way through the trial. Even though we have more to go I pray we have been through the worst of it and things will get better. I think the trial part made me sicker than the other two.
Have a great weekend, I will be thinking about you
Love
Dorene
Hi Laurie,
I went back on the shot yesterday at half doses also blood work is good but we will monitor it next week again.Since they don't know if the shots I was doing were 90 or 180 they are starting me back slowly just as they are you. I wonder how dorene know she was on 180. My nurse says he doesn't even know as it was a blind study too. Well maybe she was lucky and someone let it slip out. You know Laurie you talk alot about bone pain. Can you be any more detailed on that. I am not walking again today for the 4th time now in 2months. Not that I don't have the energy but the pain in my lower back makes it almost impossible. Have you ever seen the old ladies who suffle their feet when they walk well that is me right now. Thing is it seems to be coming regularly and well I can't even get up fast enough to make it to the bathroom and am back to peeing in a bucket along side the bed which I am barely making it there. To sit up from a laying down position is a real painful struggle, hell even rolling over in bed is near impossible. I did talk with the nurse who said sometimes previous injury will flair up on the hep c drugs. I don't recall any back injury though, she also said arthritis can flair up with the drugs so I may have it in my back and really never knew it. I know my knees hurt alot where I did have surgery. She is scheduling me with the actual doctor ( what a concept!) to see if she can figure this all out I sure hope so because I can do sick and I can do slow but I can't do paralyzed! So although it is just 11 am here I am going down for a nap. My neighbor was kind enough to drive next door, pick me up and put me in her jaccuzi for awhile I need to take advantagee of the blessing and try to get some rest.
Take Care Laurie...You too Dorene and hopefully we will all have a great day. Well At least you too I think I am out of that group today LOL Rosie
Yipee!!! You must still be undetectable!!! I'm sure they snuck a PCR test in there - I never thought I'd say I'm so happy to hear someone's getting to inject Pegasys!
Terry,
I do feel like a pin cushion! lol Wearing a Bikini right now is a bit out of the question.
But I'd rather have the be faced with the bone pain of full nuepogen shots or low blood counts.
Tell ya one thing...I would not make a good drug addict, I HATE NEEDLES! lol
Hows your painting coming along? I can't wait to see it!
Take care.
Love
Laurie
Dorene,
Here's to hoping that they stay up now!
Yes we are almost a third of the way through.
Life is going to be so much better when this is over! I don't know about you but the virus caused me a whole bunch of fatigue before I started tx. I look forward to being able to use my body the way I'm supposed to be able to use it. I'd love nothing better then to take a walk on the Appalacian trail or go for a nice long bike ride.
Next spring is going to be like Heaven!
Have an awesome weekend!
Love
Laurie
Rosie,
I'm glad to hear that your counts are climbing! It just feels like hell when they drop like that doesn't it!
My Doc. has started me back on a reduced dosage so that we don't shock my blood counts back down with full dosages. They'll build me back up over time as my body is used to each dosage level.
Dorene doesn't know for sure what dosage she was on with the Peg., she's just guessing like the rest of us. She's thinking that it was 180iu because her side effects pretty much stayed the same with her last shot. She was very worried about having increased sides.
Bone pain.....ewwwww! My bone pain is'nt caused by the Pegasys, it's caused by the Nuepogen and it only lasts for one day after the Nuepogen shot. Nuepogen effects the bone marrow causing it to build up some pressure because of increased white blood cell storage and it also coaxes the bone marrow into releasing the white blood cells. All that playing around with my bone marrow causes me to get bone pain. When I have a full shot of Nuepogen, it feels like hard throbbing with speratic tinges of small stabbing pains. With half shots, it's just a dull throb that can be managed with tylenol and one Ibuprofen.
Tx itself doesn't cause me bone pain. If I where you I'd definatly check into it further expecially if it's so much pain that you can't even move or get comfortable.
I'd also ask around more....maybe there's someone else who has had the same problem. An outstanding place to go for advise is a place called HepCNomads. I have their link on the main page of my blog, under "Hero's". It's the second one down. Just go on and register. It's a wealth of information and so many people are there that it takes no time at all to get a question answered.
You really need to check out your back pain. I had thought that maybe it would let up once your levels returned. I do get upper back pain and neck pain when my counts fall. It's almost a tell tale sign for me. But if your levels have gone up and you don't have any relief.....there's something more up. You really need to find out what. Harp on your Doctors and make it a pain in their asses until someone comes up with why.
Take care my friend....hang in there! Let us know how your doing.
((Hugs))
Love
Laurie
Iris,
My fingers are crossed that I am still undectable, but no they haven't done a PCR test for the past couple of weeks. They'll do one again on the 16th. For now they only draw blood to check my counts.
I stayed undectable the first go around of low blood counts / held tx.....I'm pretty optimistic that I'm still undectable. We'll find out after the 16th.
Restarting tx is the best thing for me. I start getting worried that if I continue to hold off tx too long that my little unwanted pet will start rebuilding it's playground in my body again. I'm sure that's not the case yet!
But I have to tell you....it was nice to feel so great for a couple of days. I think it actually renewed my mental strength.
Have a wonderful weekend my friend.
Love
Laurie
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