Yesterday became ruff. I wound up late in the day with what I can only describe as bone pain. It went way past body aches. By last night I was popping too much Tylenol just to get it to let up.
After I went to bed I felt like I was up and down all night.
This morning the bone pain has gone back to body aches, so that's a plus. The underside of my upper arms seem to be ultra sensitive from my arm pits to my elbows. I'll grab some more Tylenol to take that away.
If the body aches go away I'll feel pretty good.
I'm in week #11 and the nausea has been easy on me this week.(knock on wood) Just a slight hit here and there but nothing like it has been. I hope that it stays that way as I really need to gain some weight back.
Shot #10 tonight. Yea haw! I really wish I could have a weekend to myself. The yard is a mess and I want to get the garden back up for the summer. Unless the kids give me a hand it just doesn't look like that's going to happen.
Maybe shot#10 will give me a break and allow me to do something more than just hang out on the couch!
We'll see....
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Life and times of Dealing with a Dragon named Hep C
I found that Hep C has a nick name.
The Sleeping Dragon.
It's fitting.... Strange thing is that I've always loved Dragons.
I guess I never could have imagined that I'd have one of my own.
About Me
- Laurie
- I'm a 42 year old Mother of 5. 3 of my own and 2 of my Husbands. My 3 are 13, 17 and 21. His are 22 and 26. We have 3 boys and 2 girls. In my life I've had 17 surgeries, a tatoo and a blood transfussion. So your guess is as good as mine as to where I contracted Hep C. I do not believe it was from the tat. The gentleman that did the art was very careful with sterile tools. But who knows. I was diagnosed with Hep C on March 22, 2007. Geno type 1b with a viral load of almost 5 million. And now I turn the corner and yet a new path lay ahead of me...... A new Journey begins
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7 comments:
The bone pain is a Neupogen side effect, which I didn't get. You seem to be a side effect magnet - if there's any possible side effect within 300 yards, it finds you.
When does the study drug stop - after week 12?
Hang in there, you're doing great.
Bone pain hurts! I am a magnet and it stinks let me tell you. lol
The study drug stops after week 24. Boy how I wish it where week 12...I think the study drugs have made this so much harder.
Dear Laurie, I am reading your posts and feeling better with every one that I read, God Bless you for sharing. Two weeks ago, things were going really god, I worked every day and was up. Then the doc said that I could increase my Interferon back up to 1.0, Nothing has been the same for two weeks. Today is the first day I have felt up to even going on the Web. Then I remembered, Laurie's blog! Oh that will make me feel better. I was right, hearing about Terry and the fact that he has come out on the other side was wonderful! For two weeks I have been feeling sorry for myself, wondering if I was going to be able to stick with this when it makes me feel so awful. The only positive I have is that I am undectable! I try every day to think of something positive. I will do better, hope you are doing better
More soon
Love
Dorene
P.s. I think you are right that the study drugs make it harder, I have talked to people on the standard and they said that after about 8 to 12 weeks they got used to being sick and were better. I was hoping the same for us.
Hi Laurie,
Seems like all your trial buddies are here. I know I read your blog daily but some days I am to busy feeling pissy to write anything. I asked my nurse today about your rescue drugs and she knew exactly what I was talking about. She is checking into the procrit(sp?) for me to help with the WBC. The other she said was for the hemglobin and mine was fine. I have been only on the riba for 9 days because they were so low and was excited thinking I would feel soooooo much better but when I just felt a "little" better I guess I was still grateful. Today I went back full dose shot tonight also full dose. I thought I had another urinary tract infection as my back was going through spasms just like they did with the last one at the end of march but those test came back negative and what they decided was either my back is going through spasms and effect my bladder or my bladder is going through spams and effecting my back I swear I think they just guess most of the time so they sent me home with bladder pills, pain pills and back spasms pills to add to my collection. I think I could open my own pharmacy. My boss is really sweet and knows what's going on but even she was "joking" How long are you doing this for? I know she will stick with me but I feel bad. We are moving into a bigger office next week and as you know it is alot of work! I did have to have my hair cut shorter as it was just looking so thin that it was ugly. I had it cut in layers just above collar length. We still haven't seen you new hairdo...unless I missed it LOL. I am glad the nausea is getting a little better for you so you can gain some weight back. I'll keep my fingers crossed for you. I think if it wasn't for Terry encouraging you and you sharing your story I may have said screw it this week with all the extra stuff going on. I don't seem to get quite as severe sides as you do...I tend to be the magnet for germs jumping into my system. Well take Care of yourself. I hope Jimmy is feeling better too.
Rosie
My Trial Buddy's! :) Yep! We're all in the same boat! It's very hard for me on some day's to post so I know what not wanting to write is all about. I've just made a promise to myself that I'll keep this blog up to date....come hell or high water. So I try to write. It also helps that all of you encourage me. :)
Dorene, my fingers have been crossed that they keep my Inerferon at 75 units and that they don't put it back up to 100. 75 causes me enough misery. My heart goes out to you.
Being undectable is a major possitive, but I also know that even that victory feels like it begins to fade when you feel so bad every day. I find myself searching for possitives all the time. My newest one is the idea that at 24 weeks they'll drop the Trial drug and maybe some of these sides will let up. I have 13 more weeks to go with them, so that's become my new goal. I try not to look at the whole 48 week thing anymore as it starts to freak me out.
This tx is a battle back and forth between physical illness and the mental challenge of forcing yourself to continue.
Hang in there! If it gets you too down, don't be shy about asking your Doc. about A.D.s. This tx can play hell on your brain!
I'm so glad that you are staying in touch!
Hang in there!
We will make it through this! We have to.
My thoughts are always with you.
((Big Hugs))
Love
Laurie
Rosie! :)Wow this is great! I'm so glad to hear from the both of you!
We're only missing one....Emi.
I'm so happy to hear that your Doc checking into the Procrit! If you can get the procrit it should help build your WBC back up and stop you from getting so many infections. You'll feel sooo much better! Maybe then you'll be able to drop some of those added scripts and their sides that go along with them.
"I think I could open my own pharmacy." lol.....yep I know the feeling! I've never been a person who likes taking even Tylenol and now taking pills and injections seems to be what my life has become. I actually have to schedule my day around them. "What should I eat for the a.m. batch" "Do I have enough Tylenol in my purse for a whole day at work?" ,Wednesday is get Texas-holdem' set up at the bar and then upstairs to take Procrit and Nuepogen. Friday is Inerferon night. Life now revolves around my drugs.
I did want to tell you that I've heard of a few people who have had back problems with tx. It seems like there are times some people get bone pain in their spine and it causes their back muscles to spasm. I know that the guy that I speak to uses his hot tub to try to help his spasms. Hopefully the spasm pills will kick in and help control some of it for you.
I'm so happy to hear that both you and Dorene are still able to work! I don't know how I would do without work. It seems to help the days go by faster. It distracts my mind a little.
It is hard though. There are days that I would just like to go back to bed and sleep the day away....but I drag myself through it and at the end of the day, even though I come home and head for the couch, I feel better that I went to work.
Work does have it's own giult trip to it though. Like you I have a wonderful boss who is working with me to get me through this. My best friend is at my side all day helping me make it through. I don't know what I would do without her.
But like I said....it makes me feel quilty sometimes and it is such a long haul.
Moving! eeeew! What a task. Our move couldn't have come with worst timing. We moved at a time that I was at my lowest. ut now that it's over I love our new office and as it turned out it was a nice distraction for my mind.
Oh your right! I haven't posted a picture of my new hair-do! I'll have to take a picture when I'm feeling alittle better than today. I'll get one up as soon as I can! :)
I'm keeping my fingers crossed for you to go on the Procrit. I really think that you'll do so much better with it. A nice note is that I think that only the Nuepogen causes me to have sides. I don't think the Procrit is too hard on me, so at least you'll be looking at the nicer of the 2 drugs! :)
Take care my friend and hang in there!
You're in my thoughts always.
((Big Hugs))
Love
Laurie
Woman, you take way too much of Tylenol. Stop it. Replace it with Motrin.
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