The hard part started with my waiting to take the Zoloft at noon. I thought that maybe my taking it along with all of the rest of the drugs in the morning was making my nauseous. So I held off on it until noon. After taking it I found out that it really doesn't matter, it made me feel like hell. It seems to tense my body up and I find myself clenching my jaw.
By 4:00 the office is empty except for me and thank god for that because I wound up spending a while back and forth into the bathroom with what finally became dry heaves by the 3rd or 4th trip. What the hell do I do now? Do I continue to take it hoping that that mellows out?
My Doc is in Florida until Monday and she has someone covering for her but I think I'd rather wait until she's back to call.
I'm going to skip taking it today and maybe I'll just cut it in half on tomorrow and see how I do with that. I'll call her on Monday.
Last night was ruff too. I came home from work and went right to the couch. Started falling to sleep when the phone rang. My oldest son was riding his quad and recked. Took him to the hospital to find out that he has a concussion and he broke his collar bone into 3 pieces. Poor kid! He has to go this morning to have it set. ouch!
We didn't get home from the hospital until midnight....so here I am this morning trying to wake up again. I'm really beginning to feel the fatigue and I'm ever so thank full that today is Friday even though it's shot day. I need the weekend to sleep and rest.
Shot day.....number 8 tonight. Maybe it's just that I'm so tired....but this already feels never ending. Too many drugs.
Doc was going to raise my Interferon back up to full strength if my blood work came back good enough. I guess the blood work came back ok but not good enough to raise the interferon back up. They called to tell me to hold it at 75 units and not to go back to the full 100 yet. That's ok with me, I feel bad enough already.
I must be in a miserable mood this morning because I feel like all I'm doing is whining.....another side effect of tx! I get tired of feeling like shit and then I get tired of hearing myself say I feel like shit!
This is never ending.....
I think that Ducky has even deserted me. lol
10 comments:
Hi Laurie,
Sorry you are feeling so bad. I am feeling the fatigue really bad too. It is a chore to do most anything. There is a couple things I wanted to share with you. They put me on AD's back a couple of months to quit smoking. 3 days into it I quit the AD's because I though O would crawl right out of my skin and kill the first person who spoke to me. They made me feel soooooooooooo bad I won't go back to it. My son takes them regularly and they work for him but he has constant insomnia. Barely sleeps all the way through any night. The other thing is the dry heaves and the throwing up thing. PLEASE be ever so careful. You can really damage your esphogus and it is an ugly situation if it burst you will be throwing up gallons of blood. When you start getting that shaky, I am going to throw up, chills kind of thing that we all get at the very first sign of it suck on a sucker or hard cany mint anything that might stop the throwing up. My son has to do an upper endoscopy every 6 month due to the damage he did from throwing up so much his vesties burst. You only have 4 I believe and he has ruptured 3 of them and has rubber bands holding them together. He has had to go to the hospital by ambulence each time. Right now I have the killer rash from all of these drugs to the point it hurts to wear clothes and at my age walking aroung naked is a bit scary even for me to see. Last week as my blood counts were so low I quickly got a urinary tract infection and ended up in the emergency room with my back locked up to the point I could not walk. It really sucked as there was no warning that it was coming it was just there full force. Could not get out of bed to make it to the bathroom without help. It so sucked! There was of course more drugs to add to my collection. I am experiencing much brain retardation latley especially at work trying to do the same thing I have done over and over. I give Terry much kudo for making it all the way through this. I am wavering as I didn't feel this bad before I started all this crap and it just seems to drag on and the good days are less and less. So you are not the only one whinning I guess it comes with the program. Still waiting to see that sassy haircut of yours when you are ready. Glad you had fun in Vegas and I hope you have a blst with your new torch and all. Take CXare my friend! Rosie
Poor girl. Yeah, not an easy ride. Screw Zoloft, try soemthing else what works without side effects. You don't need additional ones.
Laurie, I am so very sorry you are not feeling well. You may have the right idea just taking half of the Zoloft, that is how I started the Prozac, the doctor told me dump half of it out for 3 or 4 days to see how I reacted, he said if ok then increase to one. It worked for me. I am pulling for you, I know how hard it can get, I just took shot 11 and they increased it so I am not looking forward to this weekend. I had actually started to feel good yesterday and was full of optimism, now I am afraid I will be right back where I was last Saturday. The Hep C is undectable and I am trying to focus on anything positive at this point. I know how you feel about the whining there are days that is all I seem to do.
Take care, take it easy
Dorene
Hi Laurie,
Finally have some time to read your blog.
Oh my gosh, do I ever have it easy. You have been through hell and back. It's awesome to learn that they were able to raise your blood levels so that you were to go back on full tx.
It's amazing too that you are still UND with all of this going on. That's must have been encouraging for you.
I'll hope it will get better for you. Usually it takes a while before body adjusts.
It's hard to take a step back but like you'd said yourself; you have to listen to your body and take it easy. Don't be so demanding. Tx doesn't last forever. It will get better again.
I'm also talking to myself hear.....not kidding.
I want to thank you for taking the time to write this blog. It's must be so uplifting and encouraging for other readers too. You are an inspiration.
Although I'm a guy I want you to give your husband a big hug from me. Spouses are often neglected but they are definitely heroes as well.
With lots of love and health for you and your family.
Rob (trial subject)
Rosie,
I was just thinking about you and wondering how you're doing!
I've been lucky enough to excape the rash for now(knock on wood). I started to get it a few weeks ago but then I used a whole bunch of moisturizer and it mellowed out for me. Terry used Gold Bond and it helped him out alot too. I used Aveno and was headed to the store for the Gold Bond if it didn't work. I would definatly try the Gold Bond.
Do you get copies of your blood work? How low is your WBC? Have they mentioned rescue drugs at all yet? Do you know what your viral load is at?
Boy I know you're having a ruff time. My heart goes out to you. Hang in there Rosie, the drugs might level out for you soon.
You're in my prayers!
((Hugs))
Laurie
Teah! Hey Lady! I missed you! :)
How's recovery?
I think I am going to go on something else as soon as my Doc is back from Fla. on Monday.
Zoloft sucks!
I send people to your blog all the time. You are such an awesome teacher for this tx.
Stay in touch...I really do miss you.
Love
Laurie
Good Morning Laurie, in one of your posts you mentioned getting more anxious or angry than normal, I am having that problem at work, when the computer won't work, people are yelling I get very anxious and snap. I was wondering if your Nurse had given you any advice about it. I hope you do not mind me asking I don't have anyone to ask. I guess because I am on a trial the doctor just takes my information but doesn't comment or give me tips to help me
I appreciate anything you can share
Dorene
Dorene,
UNDECTABLE!!! YEEEHAWWW!!! Good For You!!!
Congratulations!
:)
Thats a hell of a big possitive!
Taking half a Zoloft seems somewhat easier, but it's still not right. I'm not vomiting but I'm still nausious.
I'm going to ask for something different. There are just too many side effects going on already to have these added to the load.
I'm so happy for your "Undectable"!
You Go Girl!
((Hugs))
Laurie
Rob,
Thanks for visiting my Blog. I started this blog because I was so inspired by my friends
Teah (who completed 72 weeks of this horrid treatment) at http://Teastarwitch.blogspot.com , Iris at
http://uncertain4sure.blogspot.com , and Terry at
http://myhepcadventure.blogspot.com that I just had to start my own blog.
They have shown me the way through tx and have supported me even long before I started this little journey. We even traveled to meet each other in person. If you get the chance you should read their blogs. Their inspiration inspired this blog. :)
It is incouraging that my viral load stayed undectable through all of this. I was very concerned that it would go the other way for a while there. Thank God tx is kicking it's ass well enough to keep it down!
Yes I have to keep telling myself to listen to my body...but this is the hardest leason for me to learn. I find myself learning it the hard way...I don't listen and my body slaps me back with punishment. Then I go "Oh yeah, right...time to listen again". It's hard.
I gave my Husband that hug! He is a trouper and I know it's very ruff on him. I am so very lucky to have such an incredible man at my side! So I try to hug him often. I am blessed!
Take care yourself Rob and I hope you visit often so that we can keep in touch. It's really very nice to hear from other "Trial Buddies"!
((Hugs))
Laurie
Dorene,
Some people call it "Riba Rage" my doctor said it's from both the Ribavirin and the Inerferon. It could also be from the study drugs (they don't know if that's adding to it or not).
But no matter what it is a problem! And it is real!
I'm fighting to control the anger that keeps popping up. I usually a very patient person....but as of the last few weeks the anger has grown and I find it hard to control. I havent snapped at anyone yet (I don't think) but boy it's been right there and walking away has been a chore.
I started the Zoloft because of it. I'm hoping to go on something else due to the side effects.
Doc said that A.D.'s should help take my anger level down to a much better level...since I just started them I have yet to see that.
My friend Terry, who has just completed 48 weeks swears by A.D.'s while on TX. I wasn't going to take his advise on them because I didn't want to add more drugs.....but then the anger started and I took him up on the advise thinking that more drugs where worth the cost of my sanity.
Hang in there Dorene...It's not all in your head, the tx is causing it.
((Big Hugs))
Love
Laurie
Post a Comment