Hershey went ok yesterday. It'll take a week before I hear back on my blood counts. I should hear back from them by around next Tuesday. My Research Nurse is still leaning toward my tx being stopped before the 48 week mark. I think everyone is waiting for me to end tx so that we can find out if my counts return. They say that I would never have made it this far in tx without the Nuepogen and Procrit....but at the same time they don't really like that my counts have run so low even though I've been taking the Procrit and Nuepogen. While taking them, my counts should be much higher. So the question is - Will my counts be able to bounce back when I stop tx?
I'll be on Nuepogen and Procrit until they do. I'm sure they will. I have a resilient body. It's bounced back easily from everything else life has thrown at it.
I didn't have to do the interview with the quality of life research doctor. He filled his quota for information before I got to Hershey yesterday. Still I'd love to know where he'll go with the research.....
It's Wednesday and I think the brain fog is much better today then it has been. I took Nuepogen last night and my bones ache a bit, but it's nothing that good ole ibuprofen won't settle down. This will just be a slow moving day that's all.
Everyone is right about the last few weeks being so hard. I'm not sure if it's because all of these drugs are so built up in my body that it's wearing me down....or is my body just simply starting to scream out for the end to tx.
26 more days to go....
Enjoy the day!
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