What a beautiful weekend!
We took off yesterday at around 12:30 for Elmer, NJ to the glass shop that they've finished the front of the buidling in Mosaic Glass.
They did a beautiful job. The bottom of the Mosaic is water with fish and frogs. Moving up the building, animals are drinking from the water. The there's trees with birds and monkeys. In the middle top is the sun with rays.
It's cool. Make Jimmy and I want to get started!
The people that did it where able to tell us a few tip on how to make it survive our cold winters and hot summers. He where a wealth of information.They had a nice little shop too!
After that we went to Millville, NJ and stayed over night downtown the street from the Wheaton Glass Shops and we took a ride into Downtown Millville to hunt down the Art District that they brag about.
We really didn't find it. For the "#1 Art District" in many articles that we've read....Millville is pretty much a washed up story. It was sad.
This morning we got up and went in the Wheaton Glass Shops. The only thing that worth it there was the Hot Glass Shop where they have ongoing Glass blowing and sculpturing going that you can sit and watch. That was cool enough to sit and watch for a while, but the rest of the place wasn't too impressive. I did get a few more ideas to do with my torch work. But that's it.
I just so much enjoyed hanging out with Jimmy that it made the entire trip so wonderfully enjoyable! It was so nice to just escape.
I ate Tylenol all weekend to control the body aches, but all and all I think I did pretty good. I'm just really slow.... that's all...lol.
Tomorrow we go to Hershey. Hopefully we'll find out whats up with the lumps on my neck.
I'm sure that they'll raise my dosages back up again. I'm not looking forward to that. But hey....whatever right!
HAPPY DADDY'S DAY FELLAS!!!!!!
7 comments:
Happy Daddy's Day, Jimmi!
Good Mornin! So glad to hear that you had a good time, the pictures are beautful, thank you for sharing. I love stained glass I had a really old framed piece that hung over an old house in Baltimore but I gave it to my parents. Now I wish I had it lol
I would love to see some of your paintings, glass blowing and Jimy's stained glass work. Yes, once I am better maybe we could get together. I don't think you are too far from us but then I don't know, how far is your trip to Hershey? I hope they help you today, I am a little surprised they haven't wanted to see you before now but I go through the same so I understand. I have had this thrush since the beginning of April and it doesn't seem to completely go away no matter what I do. I am just going to be diligent with it, try more probiotics, etc. I hope everyone enjoys their day. I am going to try to go to work today.
Lots of love and hugs
Dorene
Wow that stained glass is amazing! I can see why it took so long to do. I think I would worry about something or someone breaking it though on the front of a building.
I am glad Hershey is going to see your lump on your neck. I will hold a good thought for you.
I am holding my own this week even though fatigue is with me. My husband is getting tired too so not much seems to get done. I also have been experiencing some bouts of rage which is not who I usually am and it doesn't feel good at all but it is hard to stop.
My daughter got kinda mad at me because I don't want to keep her little ones over night. They are 2 and 3. I can do days usually but by 7 pm I am dead tired and the kids are up until 9 or 10 pm. I snapped at her for making me feel like a bad grandmother...oh by the way the kids all love me. So here I am doing the bitch ,bitch. bitch thing and a little bit of the pity dance. God to tell you the truth I would rather feel sick physically then to loose my mind and personality.
I would love to see some of your and Jimmy's art work too if you want to share. I believe you did show some at the beginning of your blog ...a leather jacket or something you painted. I admire your talent...in so many more why then just your art.
Best wishes for good test results and more days with Ducky
Rosie
Good Morning Laurie! I hope that you got some help from Hershey yesterday. Let us know how you are feeling.
Rosie, I completely understand the anger, I have the same problem and that is just not me. I don't normally have this rage but I have heard it is normal. Like you, I would rather be physically ill then lose my sense of self, my mind, etc. The doc keeps saying it is just the medication, for some reason that does not comfort me much :) I fear that by the end of tx no one will like me :)
I think you were right to tell your daughter you could not babysit. You are sick, you are under treatment and she should understand. I think the biggest problem with this disease is that people look at you think you look good so how can you be sick. As I have heard they call this disease the shadow disease or Laurie has said the Sleeping Dragon, it hides for a very very long time so that when you are diagnosed people think well you have had it this long and been fine, what is the big deal. I have been trying to get my family to read books on the subject to help understand, there is a very good one out there that explains everything in normal language, Dr Melissa Palmer wrote it and my Mom sent it to me as she said it explains everything. To everyone else Good Morning! Hope your day is good
Love
Dorene
Dorene,
Thank you! I'll try to post a few pieces as we have them done. Right now artwort is kind of slow going for both Jimmy and I. I just haven't had the mind to paint since I started tx and I'm slowly getting in to the hotglass. I'm starting out with ornaments. I'll post the next peice that I get done.
The thrush is hard because it effects how and what you eat.
I tried the Probiotics too, but Doc told me not to because there was something in them that she didn't want me to have.I can't remember now what it was. It didn't seem to help anyway.
I remember asking Terry what he did to help it and he told me to just hang in there. It didn't go away during tx for him either.
The "Magic Mouthwash" doesn't take it away but it does seem to keep it under control a little bit. That along with watching what I eat too much of sort of helps. Just another side to deal with....
Hershey is about 2 hours from my house. What part of VA are you in. I'm in Hazleton PA here.
Take care my friend.
((Hugs))
Love
Laurie
Rosie,
Good Morning!
It is beautiful isn't it?
The glass is set into mortor so it's not really fragile at all. If a piece does get smashed, you just simply remove that small piece and replace it with another.
You're having what everyone calls "Riba-Rage". The Ribavirin causes it and to me it's one of the worst symptoms. There are times that I just can't stand to go out into public. There have been days that I have been so thankful for making it through without ripping someones head off.
That's just not me.
It just seemed like all my patence gets drained and everything gets on my nerves.
I tried to take A.D.'s like Zoloft and Lexapro but they brought more side effects and I just didn't need that on top of what I'm already getting.
Now I just try to ride the bad days out.
Terry had a very bad time at dealing with the Riba-Rage and other mental sides from the Ribavirin.
Some of us get it....some of us don't. Just try to remember that when it's real bad that maybe it's only bad because of the drugs and not because of reality.
Maybe you need to sit down and have a heart to heart with your Daughter.This is 48 weeks worth of chemotherapy and she has to understand just how much of a struggle it is.
People see you and they think you look pretty good! I know I have a habit of sticking on my "stupid smile" and they think I'm just hunky dory...but I'm not.I'm tired of being sick, I just don't want it to be the topic of conversation every time that I see someone in public. It gets old and I try hard not think about how I'm feeling.
This would be so much easier if I looked like I feel. Then everyone would understand better and they wouldn't say "Oh you look so good" when I feel like shit. Not to mention that to me I look like shit! lol
My point here is that I wear my stupid smile and I struggle through life trying to get even small tasks done....but when my children begin to forget that I'm on tx and I am sick, I remind them. Sometimes it's a small nudge like "look I can't do it..I just don't have the strength" and sometimes it's blunt "Don't be so selfish as to not realize that I can barely walk up the steps right now!"
Either way, there are days that we look good and they naturally forget, expecially if they are'nt living it day to day in the same house as you.
Anyway the list of side effects to tx seem to go on and on....dealing with the world in general is just another side effect in that long ass list!
I'll try to post some of our artwork as I come across it. Over the years Jimmy and I had same bad habit, we'd complete artwork and give it to the owner before taking pictures. Now years later we kick ourselves. So as I come across pictures I'll post some. Thank you! :)
Have a Beautiful Day!
((Hugs))
Love
Laurie
Me again, I am reading my blogs backwards, sorry, I have been eating yogurt by the bucket full and it doesn't seem to make it go away though it does keep it on the back burner it is still gross.
I would love to see some of your ornaments. So sorry about the itching scalp, It is maddening.
Love
Dorene
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